My Whole Expanse I Cannot See…

An unknown biological catastrophe claims a chunk of the world, cuts a clear border between the tainted and the untainted. This tainted place is called Area X, named so by an unnamed government, a government not at all above sacrificing lives to unlock the mystery that is Area X. This government charges a cloak and dagger agency, The Southern Reach, with the handling of Area X, infiltration; training personnel to cross the border and study Area X.

The very first team reported a place once inhabited by people living in modest homes, a lighthouse off the coast, then, somehow, nature took it all back. Life became death, grass, vines, spread over the homes, forests grew thick, marshlands swelled, the people apparently swallowed by nature growing unabated. Loss of life aside, the early reports described Area X as beautiful, peaceful, pure. This picture didn’t last long. Then came the mass suicide of one team, another self-destructed in a hail of gunfire, blasting each other to fleshy mounds of former colleagues. The eleventh expedition came home, only to die of a very rapid terminal cancer. Despite the early reports, Area X is dangerous, its beauty, false. Answers, however, are more important than lives, The Southern Reach is willing to spill as much blood as necessary in order to know what they need to know.

Enter the twelfth team, four women; a surveyor, a psychologist, a biologist, and an anthropologist. Teams are chosen by various statistics, skill-sets and variables known only by The Southern Reach. Team twelve is tasked to study Area X, and each other. Any member who might behave oddly or appear “changed” by Area X is to be shot on sight, lest the mission as a whole be compromised.

Thus, the stage is set for Annihilation by Jeff VanderMeer, Book 1 of the Southern Reach Trilogy.

The novel is narrated by the biologist, teams leave their names and lives behind. It’s much easier to remain impartial to each other if everything is impersonal. It’s also easier to shoot a “changed” colleague in the face if they don’t have a name, or a story. The biologist is a flawed character, a woman more comfortable around frogs and dragonflies than people and their conversations and desire for closeness. Yet, through her story, her struggles, we do care about this detached woman of science. This is part of VanderMeer’s skill, he makes us care about characters whose general lives are incomprehensible, as there’s always still some relatable spark in them.

Immediately, VanderMeer sets a tone of dread, we’re told early that members of the team will die, one very quickly. From the start, we know the mission is damned, there’s no heroic happy ending. We don’t know the hows, we only know that the biologist is looking back from the ruins of a wrecked ship. We read, desperately at times, because we want to know the hows, and more urgently, the whys. Why does The Southern Reach send people to Area X like cattle to a killing floor? Why is such a beautiful place so full of death? So many whys, but I won’t reveal them here. There’s also a what, a most important what. What ultimately becomes of the biologist? We don’t want Area X to claim her, but there’s a constant fear that in her final sentence, it will.

VanderMeer uses perfect words to paint images of gorgeous landscapes, macabre dark, hidden places, and images of death and decay that will disturb readers long after the final page is turned. His use of descriptive imagery, quick plotting, and rich character development is spot-on, perhaps the best balance he has ever struck.

Annihilation is a short, fast-paced novel that is really the beginning of a much deeper narrative. For those who have never read Jeff VanderMeer this novel is a perfect introduction, and for those who have, his brilliance will only be further demonstrated.

Buy Annihilation, it absolutely won’t disappoint, and I’m sure the rest of the trilogy will be just as spectacular.

Oh, if you hurry, you can win a copy of Annihilation here!

So, I recently read The Wordy Shipmates by Sarah Vowell, it’s about the folks who colonized New England in the 1630s. They were a bunch of well-meaning, but often destructive, ultra-religious book nerds. Their book of choice, the Bible. They were mostly Puritans. You work hard, go to church, read your Bible, you go to Heaven, that’s the gist of Puritanism. Some, however, were Calvinists. Calvinists make Puritans look like a bunch of happy-go-lucky, easy going, fey spirits.

Calvinists believed that before you’re even concieved, before your soul even enters your tiny new body, God has already decided whether you’re going to Heaven or to Hell. There’s no finding Jesus and getting saved, death-bed repentance doesn’t mean anything, God had it all figured out and He wouldn’t change His mind. So, why be good and study your Bible more rigorously than any Puritan, why be flawlessly pious if God has possibly already written you in His Going to Hell book? Well, they believed that people who “seemed” like good people, read the Bible, went to church fervently, raised kids to be pious, those people had souls that displayed all the signs of goodness and were PROBABLY scheduled for Heaven. Folks who were lazy, who couldn’t quote the Bible chapter and verse, who stole firewood during a hard winter, they behaved so because they got a Hell-bound soul. So, you ended up with a bunch of uneasy, sometimes terrified religious zealots desperately trying to “look” good.

One woman in town was particularly terrified. She was depressed a lot, didn’t like raising lots of kids, or practically living at church. She didn’t feel “good,” but tried really hard to conform. She was so scared of the not knowing which soul she was given. She couldn’t sleep, was nervous all the time. She asked the church for help, guidance, but the Calvinist Church wasn’t exactly a loving church. She didn’t find any help at church, or anywhere else. She probably suffered from mental illness, probably needed therapy and loving support from family and friends, but in the 1630s, mental illness wasn’t mental illness, it was that you had the Devil in you. You were evil. She felt evil, but wasn’t certain. She wanted to be certain, she wanted to know whether or not she was damned, just so she could finally sleep at night. To that end, she took her youngest child, a baby, and she threw it down a well. That settled things for her, she finally knew what kind of soul God gave her and that she was absolutely, without a single doubt, damned. She actually felt a bizarre peace.

I don’t want to throw any babies down any wells, I actually love babies. Whenever I see a baby out and about, I always end up transfixed, I watch their little hands, their little eyes, searching, learning. I always think about how that baby could grow up to cure cancer, or write some spectacular novel, or hit liquor and heroin really hard and be dead by thirty, or whatever. Babies are possibility, they’re the essence of potential. Not being a Calvinist, I also see that baby’s soul as perfectly clean, I don’t believe in that born sinful stuff, Jesus got screwed over so babies don’t have to worry about that. I always look at some baby and think about how they’re not all fucked up yet, unlike me they’re completely perfect. So, yeah, no killing babies to figure out what kind of soul God gave me.

Still, I’d like some certainty about some things. Where am I going after I die? I say that first, but it’s actually pretty low on my Worry List. I just don’t want to die, I want to avoid the dying. I died once, it didn’t stick, I don’t want to go again. Sometimes I get really dark and want to go vertically open my wrists, but that’s more about not wanting to feel sad than actually wanting to die. It’s also different when dying is this circumstance that’s forced on you. If you’re accidentally drowning in pineapple juice (that’s what killed me) or the hose on your vent breaks while you’re trying to buy a four hundred dollar Tumi bag, the absolute last thing you want to do is die. You beg God not to let you go, you beg to be with one certain person one more time. You’re all, “I’ll be good, really, I promise.” At least, this is how I am.

I worry about the when and how of my dying, mostly the when. I’d really like to know the when, then I could quit worrying about whether or not I have enough time to make up for the bad things I’ve done, enough time to have what I want. and feel happy. I worry I’m going to go out like Kurt and Elliott, sad and fucked up. I don’t want my story to end that way, the way it is right now.

That’s what I worry about most, running out of time, I’m constantly aware of time. I feel time, like it’s something tangible, rushing over my skin. I feel this constant sense of urgency, especially now, because I know I’m not where I want to be, and I know I’m one breath closer to to not breathing with every breath I take. I wonder if I have enough time to find my way to someplace bright. I’d like to know because living with the mindset that every day could be my last day is actually really exhausting.

I wonder how many of those Tony Robbins, motivational, “Live like there’s no tomorrow” types, I wonder how many of them actually walk that talk. Living like that, really believing the words, it’s not easy to carry. When you want something, you want it like there’s a gun to your head, like, at any second that trigger could get pulled and you won’t ever get to that kiss, that I love you, that waking up somewhere beautiful until you quit waking up. People don’t understand why spending time together is so important to you, because your clock feels so much faster than theirs. For other people there’s always tomorrow for walking under stars or curling up in bed to watch some movie about a talking fox, and to you, both experiences are more important than winning a million dollars. Loss hurts more because you don’t believe that chances are unlimited, in your head, chances are like a pack of used bar matches, you only get so many lights. Sometimes it all get so heavy that you look for ways to stop thinking, to stop wanting, just for a few hours. Liquor bottles and drug needles do that trick, but they’re exactly that, a trick. They just make it so the clock disappears behind a curtain, but just like any magician’s assistant, the clock always comes back.

Once you actually know about these things, once you stop seeing the end of your time as some kind of fiction, well, there’s no not knowing them. A bunch of Nirvana songs end up making perfect sense.  Like that Calvinist woman, lack of certainty makes peace hard to find. Such is true in my experience anyhow, but like I said, I’ll never toss a baby down a well for answers to questions that’ll probably come when I don’t answers anymore.

So, a reader recently left this… awe-inspiring comment, then she e-mailed me just to make sure I got it.

Here we go…

I’ve been following your blog for a while and I am sorry to see how depressed you’ve been feeling. One certainly cannot blame you and I think I’d be having a change of mind about the trach as well. As someone who works in the medical field, I say without reservation that modern medicine is at times a blessing and also a curse – no question about that. Could you (would you want to?) communicate to your doctors that you want the trach removed and want to be DNR/DNI? If people can proactively decide not to be intubated, can you retroactively decide against a trach?

Just a friendly suggestion, but what if you started writing some sort of legacy pieces that are more congruous with where you are mentally right now? Maybe try writing your own obituary, advice to future generations, survival guide for families new to a SMA diagnosis, how to deal with a global environment that is fucked, how not to fuck up the colonization of a new planet, etc. It could be depressing, honest, depressingly honest, satirical..

After I stopped feeling like a turtle who got smacked in the head with a liquor bottle, after I stopped gaping at my e-mail client, I read it again. I did just wake up, maybe it was the tail-end of some fucked up dream, but no. It’s real. I’m writing about it, so it must be real.

First, let me acknowledge that I’m sure the commenter is totally well-meaning, totally “just trying to help.” Nevertheless, it’s also hands down one of, if not the most, disturbing things I’ve ever read. I’m not even sure where to begin discounting its wrongness, there’s just so much.

Modem medicine is a blessing, my trach is a blessing, I’m so beyond blessed to have this little plastic tube in my throat and doctors who take such good care to make sure I get to keep going. I would never in a million years sign a DNR/DNI, I can’t even imagine “retroactively deciding against” my trach. I like my tubes and hoses right where they are, and if I ever need more, I’ll get more. I’ll do whatever it takes to keep breathing, and I want all my doctors to share in that idea. I don’t think anyone with SMA has any business signing a “let me die” piece of paper, and it honestly scares me to think that anyone in the medical field would encourage such. We have assistants and assistive technology and traches and portable vents so that we can get out into the world and have the chance to live a decent life, just like anybody else. Nobody’s guaranteed a decent life, but so long as we’re still breathing, we have that chance. That chance to be someone’t best friend, someone’s lover, even someone’s mom or someone’s dad, if that’s the road you want to try. Signing some “let me die, don’t bother saving me” paper ends all of those spectacular chances.

Yes, I’m pretty down, way down, but that has absolutely nothing to do with my disability or general medical condition. I really hate how that’s such a quick, popular assumption, especially given the fact that nothing I write even implies such. It particularly disturbs me that someone in the medical field could make that assumption. It just shows that society’s expectations for people with disabilities are far too low. الروليت الامريكي

I wrote about how it would have been better had that trach not gone in, I felt completely alone, and sad, missing someone who didn’t miss me, so I wrote how I felt, honestly, in that moment. I didn’t say, “I wish the doctors had quit trying to make that trach fit. If only I could walk, then everything would be so okay,” nor would I ever. That’s just stupid. I wrote about feeling like a fuck up, the weight of my mistakes. I didn’t want to feel that loneliness, that emptiness, so I wrote what I wrote.

People who commit suicide, or try to commit suicide, it’s not always because they genuinely want to die, they just don’t want to feel sad or lonely or empty, or whatever, anymore, and they don’t see a way past those feelings. العب بلاك جاك If you feel bad enough for long enough, you just want it to stop. I’m in the unique position of having that bad thought, that genuine, “I’m going to go open my wrists” thought, then having no choice but to feel it until it stops. It does stop, it always stops, that’s why suicide is such a shame. People run out of time before that feeling stops. For me, before that feeling stops, while I’m feeling it, I tend to write it. I need to get it out of my head and put it somewhere else. I am down, really down, and I don’t know when that’ll end, but absolutely none of it has anything to do with changing my mind about the little plastic tube in my throat. I lost my best friend, I lost someone I love more than I could possibly explain. I’ve made mistakes, screwed things up. I feel like I’m drowning, I’m scared I’ve made too many wrong choices and I don’t have enough time to do things right. My trach, my disability, my general medical state, they are no source of regret.

I’m fucked up like lots of people are fucked up. Elliott Smith, Kurt Cobain, they wrote song after song that tell stories like mine, stories I know from experience. They didn’t write those songs because some doctor stuck a little plastic tube in their throats.

I will never, ever regret telling that e.r. doctor to do whatever he had to do to keep me going. I’d make the same choice a thousand times over. I’ll die when God figures it’s time, when there’s completely nothing left to save me. One day, a hose will break, or a trach won’t fit, or some infection will fill my lungs until I quit breathing, nothing anybody does will save me, but people will try, and I’ll want them to try.

Oh, and no, I won’t be writing any “legacy pieces,” like I’m already dead. كيفية لعب بوكر I’m still here, I’ll keep writing about right now.

Tattoo by Fish, Doc Dog's Las Vegas Tattoo, Ybor City

So, my thirty-fifth tattoo is from an Alanis Morissette song, Can’t Not, which is on my favorite Alanis album, Supposed Former Infatuation Junkie.

To me, the song is about how artists practice their craft in spite of criticism, scrutiny, and the pain one feels from being struck by such weapons. People who are passionate about their craft, whether it’s visual art, or music, or writing, they feel a drive to share what they create, to put it out there for anyone to take in. Sharing such creation opens one up to not only praise, but also harsh words and deep criticism. It can be painful for one to have what they create knocked and dismissed, spoken badly of, but that drive to create and share outweighs any feelings of pain that come from practicing one’s craft with absolute honesty. Creation for the sake of creation, whether anyone likes it or not. Alanis writes songs that make people uncomfortable, some just flat out don’t like her, and that dislike hurts, but she simply can’t not write those songs. She can’t not be herself and create with complete honesty.

Whenever I write about depression, or suicide, or sex, or derision toward God, fictionally or otherwise, it is likely to upset someone (especially people close to me). Honesty in writing, particularly when it comes to personal subjects, isn’t always welcome, but this is what I do and I can’t not do it. No matter how much I hate any personal fallout the things I write can cause, this is my craft and I can’t not practice it.

Really, I have something deep inside me, something that pushes me to do things no matter what. I can’t not do things like, tell a woman how completely I love her, even though she might not love me back, or look into her eyes and tell her how much I want to kiss her, to take off all her clothes for the first time. I can’t not travel and experience things, even though something could go astonishingly wrong with the machines, and hoses, and tubes that keep me breathing. I almost died going to a movie last December, but I can’t not go, and do, and be. I do things because I can’t not.

Well, it was a little harrowing, but we are up and running under WordPress 2.6! I’m really glad I backed up my old install because I screwed something up on my first two upgrade attempts. Had I lost this blog, I’d have walked off my roof, which would actually have been the most amazing suicide of all time…

The Father: Wait. What happened?

Jesus: Yeah, no shit, he walked off his roof.

The Father: Wait… What?

Jesus: He. walked. off. his. roof.

The Father: You’re shitting me.

Jesus: No, Father, I’m not shitting you. He definitely walked, off his roof.

The Father: Really?

Jesus: Sigh…