My Whole Expanse I Cannot See…

I formulate infinity stored deep inside of me…

Jul 29


Category: Life

So, last month I was contacted by the President of Passy-Muir, Inc, makers of the Passy-Muir Valve. It’s a plastic valve that attaches to traches, hopefully allowing users to talk. Experts from the company are flying in tomorrow morning, people who worked with Christopher Reeve and Pope John Paul II, 45 members of the hospital are coming to watch, I couldn’t be in more skilled hands. Will it work for me? I have no fucking idea. I want it to work, but I’m afraid to want it too much. I’m going in with low expectations, it’s all I can do right now. At least it’ll be over one way or another.


5 Comments so far

  1. arsenalgear July 29th, 2008 10:19 pm

    So, why are they flying in? Isn’t it like you just pop it on, and voila, you can talk? Is this a new model? The valve works exceptionally well. I’d be pretty screwed without it.

    On a separate note, if you have the opportunity, please ask the Passy-Muir bigwigs why mine makes a sound like a duck call on rare occasions.:)

    Good luck!

  2. red July 30th, 2008 3:01 am


    Earlier tonight I watched the This American Life that profiles you. What powerful stuff! I really enjoyed hearing about your “American Life” with its challenges and your inexorable desire for freedom and autonomy and love. Seeing the beauty of your connection with Sara really touched me. I’m glad that you are willing to be vulnerable and share your experiences with the world. It helps me better appreciate the opportunity that being alive provides all of us.

    I will return to read what’s going on for you now.

    Dave McCain

    PS Best of luck with the new valve 🙂

  3. MagnoliaFly July 30th, 2008 10:11 am

    Wow thats kind of a lot of pressure – 45+ people watching you? At least you get to show off your new tat! I hope it works.


  4. Ormolu July 30th, 2008 12:09 pm

    Wow. I really hope this is successful for you. You’ll be in my thoughts. Good luck! 🙂

    And I have to say, I really agree with what the other reader posted above:
    “I’m glad that you are willing to be vulnerable and share your experiences with the world.”

    I second that.

  5. Lori July 31st, 2008 5:56 pm

    I hope it worked well! Can’t wait to hear about its use.